There are many ways to make a donation to help Hunter get the wheelchair van he so desperately needs. You can...
Donate online at http://www.gofundme.com/2qlwhg (does not accept Paypal, uses WePay)
Donate by mail:
River Valley Financial Bank
P.O. box 1590
Madison, IN 47250
Make check/money order payable to "Hunter's Heroes"
You can also make a donation in person at any of River Valley Financial Bank's locations
Monday, April 15, 2013
Wish List
Financially the Darlages are unable to afford
most of the expensive equipment that would make caring for Hunter more
comfortable for him and just a little easier for them. Medicaid doesn't cover
things like an at-home therapy table to assist in taking care of Hunter’s
personal hygiene, portable wheelchair ramps which would allow Hunter to be more
easily mobile at home or a wheelchair accessible van to transport him more
safely and comfortably. The Darlages are currently traveling approximately
500-750 miles each week for appointments to meet Hunter’s medical needs and
it’s costing them a small fortune in gas just to get him back and forth. There
simply aren't the funds to purchase the tools that would make all of their
lives a little easier.
Hunter's Heroes would like to help the Darlage family have access to the educational, therapeutic and other tools that would enrich Hunter's life. Hunter loves the outdoors and we'd also like to see him get a few of the things that would expand his mobility outdoors as well!
portable wheelchair ramp and deck
portable therapy table
adaptive bicycle
golf cart
hot tub
Hunter's Heroes would like to help the Darlage family have access to the educational, therapeutic and other tools that would enrich Hunter's life. Hunter loves the outdoors and we'd also like to see him get a few of the things that would expand his mobility outdoors as well!
portable wheelchair ramp and deck
portable therapy table
adaptive bicycle
golf cart
hot tub
Glossary Of Terms Used On This Blog
Neutropenia
Neutropenia (noo-troe-PEE-nee-uh) is an abnormally low count of neutrophils, a type of white blood cell that helps fight off infections, particularly those caused by bacteria and fungi. The lower your neutrophil count, the more vulnerable you are to infectious diseases. If you have severe neutropenia — fewer than about 500 cells per microliter of blood — bacteria normally present in your mouth and digestive tract can cause infections. SOURCE: http://www.mayoclinic.com/health/neutropenia/MY00110
Pyloric Stenosis
Pyloric stenosis is an uncommon condition affecting the opening (pylorus) between the stomach and small intestine in infants. The pylorus is a muscular valve that holds food in the stomach until it is ready for the next stage in the digestive process. In pyloric stenosis, the pylorus muscles thicken, blocking food from entering the baby's small intestine. Pyloric stenosis can lead to forceful vomiting, dehydration and weight loss. Babies with this condition may seem to always be hungry. SOURCE: http://www.mayoclinic.com/health/pyloric-stenosis/DS00815
Tethered Spinal Cord Syndrome
Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Attachments may occur congenitally at the base of the spinal cord (conus medullaris) or they may develop near the site of an injury to the spinal cord. These attachments cause an abnormal stretching of the spinal cord. The course of the disorder is progressive. SOURCE: http://www.ninds.nih.gov/disorders/tethered_cord/tethered_cord.htm
Neutropenia (noo-troe-PEE-nee-uh) is an abnormally low count of neutrophils, a type of white blood cell that helps fight off infections, particularly those caused by bacteria and fungi. The lower your neutrophil count, the more vulnerable you are to infectious diseases. If you have severe neutropenia — fewer than about 500 cells per microliter of blood — bacteria normally present in your mouth and digestive tract can cause infections. SOURCE: http://www.mayoclinic.com/health/neutropenia/MY00110
Pyloric Stenosis
Pyloric stenosis is an uncommon condition affecting the opening (pylorus) between the stomach and small intestine in infants. The pylorus is a muscular valve that holds food in the stomach until it is ready for the next stage in the digestive process. In pyloric stenosis, the pylorus muscles thicken, blocking food from entering the baby's small intestine. Pyloric stenosis can lead to forceful vomiting, dehydration and weight loss. Babies with this condition may seem to always be hungry. SOURCE: http://www.mayoclinic.com/health/pyloric-stenosis/DS00815
Tethered Spinal Cord Syndrome
Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. Attachments may occur congenitally at the base of the spinal cord (conus medullaris) or they may develop near the site of an injury to the spinal cord. These attachments cause an abnormal stretching of the spinal cord. The course of the disorder is progressive. SOURCE: http://www.ninds.nih.gov/disorders/tethered_cord/tethered_cord.htm
What Is Cerebral Palsy
Cerebral palsy is a disorder of movement, muscle tone or posture that is caused by injury or abnormal development in the immature brain, most often before birth.
Signs and symptoms appear during infancy or preschool years. In general, cerebral palsy causes impaired movement associated with exaggerated reflexes or rigidity of the limbs and trunk, abnormal posture, involuntary movements, unsteadiness of walking, or some combination of these. The effect of cerebral palsy on functional abilities varies greatly.
People with cerebral palsy often have other conditions related to developmental brain abnormalities, such as intellectual disabilities, vision and hearing problems, or seizures. A broad spectrum of treatments may help minimize the effect of cerebral palsy and improve a person's functional abilities.
For more information visit the source of this article at: http://www.mayoclinic.com/health/cerebral-palsy/DS00302
Sunday, April 14, 2013
The Darlage Family
Who Are Hunter's Heroes?
The Original Hunter's Heroes team! From L to R: Braydon, Monica, Brian and Cheyenne. Second row: Hunter, Benny and Michael Sullivan.
Last summer Hunter underwent a serious surgery on his hips. The surgery, in medical terms, is called a triple osteotomy. Hunter was in the hospital for nine days in which none of his family left his bedside, including me. Throughout these nine days our family met with numerous doctors, nurses and other medical staff. Monica and I would occasionally take a break to get out of the room and clear our minds. We were discussing how hard this point in Hunter’s life was going to be. This family had no help and money was wearing thin. This is what led me to come up with idea for Hunter’s Heroes.
I started Hunter’s Heroes as a way to show the family that there are people willing to help. The intention of this fundraiser was to raise enough money to afford a golf cart, one of Hunter’s greatest desires. We began selling adult and children’s t-shirts and hats. At first, the orders came flying off the shelves. Cheyenne and I would meet, almost every weekend over the summer, with people to collect their money and deliver their shirt. We live in Indianapolis and when school started back up, we made a trip down every weekend to make sure that all the shirts got to everyone who ordered one. After weeks of this routine, people stopped coming to donate and pick up their shirts. It was hard to see this cause fall through. We kept the shirts in a tin and just started to hand them out for anyone who wanted one. We raised enough money to cover some gas for trips to and from Peyton Manning Children’s Hospital, but that was all. We still call ourselves Hunter’s Heroes and occasionally somebody in town wearing the shirt and it’s just a reminder of how much one child means to entire community.
My name is Michael Sullivan. I am currently engaged to Cheyenne Howard, the sister of Hunter Darlage. Cheyenne and I have been together for over three years, which has given me plenty of time to get to know Hunter and become his brother.
Last summer Hunter underwent a serious surgery on his hips. The surgery, in medical terms, is called a triple osteotomy. Hunter was in the hospital for nine days in which none of his family left his bedside, including me. Throughout these nine days our family met with numerous doctors, nurses and other medical staff. Monica and I would occasionally take a break to get out of the room and clear our minds. We were discussing how hard this point in Hunter’s life was going to be. This family had no help and money was wearing thin. This is what led me to come up with idea for Hunter’s Heroes.
I started Hunter’s Heroes as a way to show the family that there are people willing to help. The intention of this fundraiser was to raise enough money to afford a golf cart, one of Hunter’s greatest desires. We began selling adult and children’s t-shirts and hats. At first, the orders came flying off the shelves. Cheyenne and I would meet, almost every weekend over the summer, with people to collect their money and deliver their shirt. We live in Indianapolis and when school started back up, we made a trip down every weekend to make sure that all the shirts got to everyone who ordered one. After weeks of this routine, people stopped coming to donate and pick up their shirts. It was hard to see this cause fall through. We kept the shirts in a tin and just started to hand them out for anyone who wanted one. We raised enough money to cover some gas for trips to and from Peyton Manning Children’s Hospital, but that was all. We still call ourselves Hunter’s Heroes and occasionally somebody in town wearing the shirt and it’s just a reminder of how much one child means to entire community.
Contact
All email inquires should be sent to info@heroes4hunter.com
You can call Hunter's Heroes at (812) 269-8819 -be sure to leave a message if you would like a return call with your name, phone number, reason you calling and the best time to reach you.
Please remember that Hunter's Heroes is driven completely by volunteer manpower and we ask that you be patient with us. We do try to return every call and email in a timely manner.
You can call Hunter's Heroes at (812) 269-8819 -be sure to leave a message if you would like a return call with your name, phone number, reason you calling and the best time to reach you.
Please remember that Hunter's Heroes is driven completely by volunteer manpower and we ask that you be patient with us. We do try to return every call and email in a timely manner.
Frequently Asked Questions
1. Why do only some of the social media outlet buttons work?
The Hunter's Heroes blog is a work in progress. Please be patient as the blog was created and is being maintained by volunteers and Hunter's mom.
2. I use Google Chrome and the RSS Feed does not work, what's the problem?
Google Chrome is the problem, not our site or your computer. You need to add this extension for the RSS Feed to work correctly on Google Chrome
https://chrome.google.com/webstore/detail/nlbjncdgjeocebhnmkbbbdekmmmcbfjd?hl=en-US
The Hunter's Heroes blog is a work in progress. Please be patient as the blog was created and is being maintained by volunteers and Hunter's mom.
2. I use Google Chrome and the RSS Feed does not work, what's the problem?
Google Chrome is the problem, not our site or your computer. You need to add this extension for the RSS Feed to work correctly on Google Chrome
https://chrome.google.com/webstore/detail/nlbjncdgjeocebhnmkbbbdekmmmcbfjd?hl=en-US
Friday, April 5, 2013
Hunter In The News
05/16/2013 -Hunter's Heroes Need Help on Bluzink
04/23/2013 -Special Needs Teen In The Running For A Handicapped Accessible Van on Wave3 News
04/23/2013 -Special Needs Teen In The Running For A Handicapped Accessible Van on Wave3 News
It Works! Sales Promotion For Hunter Darlage
Becky Grider, an independent consultant for a company called "It Works" has stepped up to help Hunter's Fund!
It Works! sells naturally based body contouring products that are unlike any other product on the market today.
They have agreed to donate $5.00 per body wrap sold and $10.00 for any items purchased off their website.
Please check out Becky Burton Grider's site at https://beckygrider.myitworks.com/Home HOWEVER: if you wish to purchase a wrap, email her privately at beckygrider@hotmail.com to ensure Hunter gets the donations.
You can also check out Becky on Facebook here https://www.facebook.com/nvbodywraps
It Works! sells naturally based body contouring products that are unlike any other product on the market today.
They have agreed to donate $5.00 per body wrap sold and $10.00 for any items purchased off their website.
Please check out Becky Burton Grider's site at https://beckygrider.myitworks.com/Home HOWEVER: if you wish to purchase a wrap, email her privately at beckygrider@hotmail.com to ensure Hunter gets the donations.
You can also check out Becky on Facebook here https://www.facebook.com/nvbodywraps
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